Verified
Health
Emma tells her story
Calm, sincere tone
I have a rare disease. There's treatment out there. There's hope for a cure. But I can't afford it.
EM
Emma's Family
Austin, Texas • Organized by Emma's parents
$200,000
goal: $10,000,000
Watch the video and see why this help is my only shot.
Emma tells her story (1min30s - 2min) | Calm, sincere tone
What Spinal Muscular Atrophy (SMA) Really Is
SMA is a rare and serious genetic disease that affects the motor neurons - basically the parts that control how your body moves. As time goes on, it causes:
- Your muscles to get progressively weaker
- Trouble walking, swallowing, and breathing
- You lose your independence
- It's actually life-threatening if you don't get treatment
Without the right treatment, the disease just keeps getting worse.
The Treatment and Real Hope
Today, there's this cutting-edge, super-specific treatment that's been developed to target the exact genetic cause of SMA.
Here's what this treatment does:
- It tackles the genetic problem that's causing the disease
- Stops the disease from progressing
- Helps you gradually get your function back
- Gives you a real shot at stabilizing and getting significantly better
Where Your Money Goes
Every single donation goes straight to:
- Getting the expensive medication
- Hospital stays and specialist care
- Genetic testing and check-ups
- The whole medical team
- All the care needed during treatment